So Cal bound...

As I type I am sitting co-pilot traveling 101 South. To my right... miles and miles of gorgeous ocean views and to my left miles and miles of hilarious conversations with the Hubs. Behind me Koen is napping and Haddie Mae keeps looking out the window saying "Cool that" one of her many hilarious phrases lately. Her speech therapist loves it too:) This first half of our trip has me thinking how very lucky we are! Yes it's a total bummer to have to include a hospital visit but if we have to at least I am surrounded by all of God's glory along the way! 

Tomorrow HMae and I will wake up bright and early to make the 1.5 hour drive from Grandma's house to Children's Hospital Los Angeles. We check in at 8am and brace ourselves for 5-6 hours of poking and prodding by 8 different doctors. The good news is nothing will be invasive! No blood draws or scans! Hallelujah. Just a large team of doctors who will monitor all aspects of her growth and development. I am a little anxious I admit because this sweet girl is stronger than me and five guys put together! Hopefully she will be compliant. It's a long day for an almost two year old.

After that we are done for the week! We are going to shop and play and swim in Grandma's pool and celebrate Grandma's birthday! We are even planning to sneak in a family photo session with the amazing Corey Morgan of www.coreymorganphotography.com 

I can't wait!

We are still awaiting the results of the last blood test we did at UCLA.

We were thrilled with Dr. Martinez and his staff.

He believes there is a strong possibility that the genetic mutation Haddie has could be an undiscovered form of BWS.

Like I have said before this little girl has a way of showing us how lucky we are to be on this journey with her. She is rare. And we wouldn't have it any other way.

It could be months before we find out. The news wouldn't change too much except it may help the doctors better understand Beckwith-Wiedemann Syndrome.

And what's a post without a few photos!

We celebrated Papa's 2nd anniversary in Heaven by spending it with the people we love the most.

We also celebrated Shauna's new job as Principal! We are so proud of her we could burst!

We gave the new Principal a proper parking place... Hehe

A pretty girl with a pretty flower!

This little giraffe was made for HMae by Healing Helpers.

It has zippers in the same places that her surgeries occurred.

Complete with stitches on the organs to show the repair

We visited Mid- State Fair and said our goodbye's to the neighbor kids 4-H projects:(

Haddie will miss you Muzzy the cow. 

She loved the pigs! She even yanked a few of their curly tails!

Happy August to everyone! I hope you back to school days go smoothly! And your summer nights long and lovely.

Much love,

Melissa